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Registry aims to uncover long-term outlook for rare blood-clot lung disease

NCT ID NCT05843500

Recruiting now Knowledge-focused Sponsor: University of California, San Francisco Source: ClinicalTrials.gov ↗

First seen Jul 14, 2026 · Last updated Jul 15, 2026 · Updated 1 time

Summary

This study follows people with chronic thromboembolic disease (CTD) or chronic thromboembolic pulmonary hypertension (CTEPH) — conditions where blood clots scar the lungs' blood vessels. Researchers track survival, exercise ability, oxygen use, and quality of life over time using surveys and medical records. The goal is to better understand how different treatments affect long-term outcomes.

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Conditions

The condition(s) this trial relates to.

chronic thromboembolic pulmonary hypertension

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CHRONIC THROMBOEMBOLIC DISEASE CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSION

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • University of California San Francisco

    RECRUITING

    San Francisco, California, 94143, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

More trials for these conditions

Other studies related to the condition(s) this trial covers.