New tool aims to give voice to heart sarcoidosis patients

NCT ID NCT05145023

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study aimed to create and test a new questionnaire called CARD-SARC that measures how cardiac sarcoidosis affects patients' daily lives and well-being. Researchers worked with 130 adults diagnosed with cardiac sarcoidosis at two NHS specialist centres. The goal was to develop a reliable tool that doctors can use to track changes in quality of life over time.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Royal Papworth Hospital NHS Foundation Trust

    Cambridge, CB20AY, United Kingdom

  • St Bartholomew's Hospital - Barts Health NHS Trust

    London, EC1A 7DN, United Kingdom

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