Scientists track rare genetic heart condition in 30 patients worldwide

NCT ID NCT07486752

Summary

This study aims to learn how a specific inherited form of heart muscle disease (dilated cardiomyopathy) progresses over time in adults who have a harmful change in their BAG3 gene. Researchers will follow about 30 patients to document their symptoms, heart function, and quality of life while they receive standard medical care. The goal is to gather detailed information to better understand this rare genetic condition.

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Contacts and locations

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Conditions

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