Patient stories could unlock new treatments for rare appendix cancer
NCT ID NCT07769346
First seen Aug 17, 2026 · Last updated Aug 17, 2026
Summary
This study is building a global patient registry to collect real-world information from people diagnosed with appendix cancer or pseudomyxoma peritonei (PMP), a rare condition where tumors spread in the abdomen. Participants and caregivers share details about their symptoms, treatments, and outcomes over time. The goal is to better understand how these diseases progress and to provide the data needed to design future clinical trials and improve care.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry could provide the large-scale, real-world data needed to design better treatments and clinical trials for appendix cancer and PMP.
- What could go wrong
- As a registry, it does not test a treatment, so it cannot directly prove what works. Data relies on patient and caregiver reports, which may be incomplete or biased.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Email: •••••@•••••
Locations
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ACPMP
RECRUITINGSpringfield, Pennsylvania, 19064, United States
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