New study tracks angelman Syndrome's yearly changes

NCT ID NCT07417137

Recruiting now Knowledge-focused Sponsor: Massachusetts General Hospital Source: ClinicalTrials.gov ↗

First seen Feb 22, 2026 · Last updated May 15, 2026 · Updated 6 times

Summary

This study follows 40 children and adults with Angelman syndrome for one year to see how their communication, motor skills, and behaviors change. Participants visit the study site every three months for tests and questionnaires, plus have brain activity measured with EEG and wear a sleep monitor at home. The goal is to better understand the natural course of the condition, not to test a treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

MGH Lurie Center for Autism
RECRUITING

Lexington, Massachusetts, 02421, United States

Contact

Contact Phone: •••-•••-•••• Email: •••••@•••••

Contact Phone: •••-•••-•••• Email: •••••@•••••

Contact

Conditions

Explore the condition pages connected to this study.

ANGELMAN SYNDROME