Massive data bank launched to unlock secrets of ALS and motor neuron diseases
NCT ID NCT05966038
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is building a large database of health information from 5,000 people with ALS and other motor neuron diseases. Participants share details like symptoms, test results, and disease progression during regular clinic visits. The de-identified data is then shared with researchers worldwide to help them better understand these conditions and develop new treatments.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Centro Clinico NEMO Milano
RECRUITINGMilan, 20162, Italy
Contact
Contact Email: •••••@•••••
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Hadassah Medical Organization
RECRUITINGJerusalem, 9112001, Israel
Contact
Contact Email: •••••@•••••
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Henry Ford Health System
RECRUITINGDetroit, Michigan, 48202, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Istituti Clinici Scientifici Maugeri SpA
RECRUITINGMilan, 20138, Italy
Contact Email: •••••@•••••
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Contact
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Kaiser Permanente
RECRUITINGLos Angeles, California, 90027, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Lahey Clinic
RECRUITINGBurlington, Massachusetts, 01805, United States
Contact
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Loma Linda University Health
RECRUITINGLoma Linda, California, 92354, United States
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Northwestern University
RECRUITINGChicago, Illinois, 60611, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Providence ALS Clinic
RECRUITINGPortland, Oregon, 97213, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Saint Louis University
RECRUITINGSt Louis, Missouri, 63104, United States
Contact
Contact Email: •••••@•••••
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Tel Aviv Medical Center
RECRUITINGTel Aviv, 64239, Israel
Contact Email: •••••@•••••
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Temple University Lewis Katz School of Medicine
RECRUITINGPhiladelphia, Pennsylvania, 19140, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Thomas Jefferson University
RECRUITINGPhiladelphia, Pennsylvania, 19107, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Trinity Health Michigan
RECRUITINGGrand Rapids, Michigan, 49503, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Florida
RECRUITINGGainesville, Florida, 32610, United States
Contact
Contact Email: •••••@•••••
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University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55455, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15360, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 22908, United States
Contact Email: •••••@•••••
Contact