Massive data bank launches to unlock secrets of ALS and motor neuron diseases
NCT ID NCT05966038
First seen Nov 17, 2025 · Last updated May 12, 2026 · Updated 19 times
Summary
This study is building a large database of health information from up to 5,000 people with ALS and other motor neuron diseases. Participants attend regular clinic visits where researchers record their symptoms, test results, and disease progression. The de-identified data is then shared with scientists worldwide to help them better understand these conditions and develop new treatments.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Centro Clinico NEMO Milano
RECRUITINGMilan, 20162, Italy
Contact
Contact Email: •••••@•••••
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Hadassah Medical Organization
RECRUITINGJerusalem, 9112001, Israel
Contact
Contact Email: •••••@•••••
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Henry Ford Health System
RECRUITINGDetroit, Michigan, 48202, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Istituti Clinici Scientifici Maugeri SpA
RECRUITINGMilan, 20138, Italy
Contact Email: •••••@•••••
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Kaiser Permanente
RECRUITINGLos Angeles, California, 90027, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Lahey Clinic
RECRUITINGBurlington, Massachusetts, 01805, United States
Contact
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Loma Linda University Health
RECRUITINGLoma Linda, California, 92354, United States
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Northwestern University
RECRUITINGChicago, Illinois, 60611, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Providence ALS Clinic
RECRUITINGPortland, Oregon, 97213, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Saint Louis University
RECRUITINGSt Louis, Missouri, 63104, United States
Contact
Contact Email: •••••@•••••
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Tel Aviv Medical Center
RECRUITINGTel Aviv, 64239, Israel
Contact Email: •••••@•••••
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Temple University Lewis Katz School of Medicine
RECRUITINGPhiladelphia, Pennsylvania, 19140, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Florida
RECRUITINGGainesville, Florida, 32610, United States
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Contact Email: •••••@•••••
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University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55455, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15360, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 22908, United States
Contact Email: •••••@•••••
Contact
Conditions
Explore the condition pages connected to this study.