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Norwegian scientists hunt for ALS genes in 1,200 patients

NCT ID NCT05119387

Knowledge-focused Sponsor: Sykehuset Telemark Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study aims to find genetic causes and risk factors for ALS by analyzing DNA from 1,200 people in Norway with probable or definite ALS. Researchers will look for known disease-causing mutations and search for new genes linked to the disease. The goal is to better understand why ALS develops, which could guide future research.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this could uncover new genetic targets for future ALS treatments and improve understanding of why some people develop the disease.
What could go wrong
This is an observational study, not a treatment trial. It may not directly benefit participants, and finding new genes does not guarantee new therapies.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,200 people

The number the study aims to enrol. It can still change while the study runs.

Started

Aug 2019

Expected to finish

Dec 2035

An estimate. End dates often move.

Lead sponsor

A government agency

The lead sponsor is a government body.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Individuals diagnosed with ALS that are being followed through the Norwegian health-care system.

Ages

16 to 100 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Probable or definite ALS * Eligible to consent Exclusion Criteria: \- not competent to give consent

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Conditions

The condition(s) this trial relates to.

amyotrophic lateral sclerosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Amyotrophic lateral sclerosis

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    17 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Akershus University Hospital, Department of Neurology

    RECRUITING

    Lørenskog, Norway

  • Fonna Hospital Trust, Department of Neurology

    RECRUITING

    Haugesund, Norway

  • Førde Hospital Trust, Department of Neurology

    RECRUITING

    Førde, Norway

  • Haukeland University Hospital, Department of Neurology

    RECRUITING

    Bergen, Norway

  • Innlandet Hospital Trust, Department of Neurology

    RECRUITING

    Lillehammer, Norway

  • Møre and Romsdal Hospital Trust, Department of Neurology

    RECRUITING

    Molde, Norway

  • Nord-Trøndelag Hospital Trust, Department of Neurology

    RECRUITING

    Namsos, Norway

  • Nordland Hospital Trust, Department of Neurology

    RECRUITING

    Bodø, Norway

  • Oslo University Hospital, Department of Neurology

    RECRUITING

    Oslo, Norway

  • St. Olavs Hospital, Department of Neurology

    RECRUITING

    Trondheim, Norway

  • Stavanger University Hospital, Department of Neurology

    RECRUITING

    Stavanger, Norway

  • Sørlandet Hospital Trust, Department of Neurology

    RECRUITING

    Kristiansand, Norway

  • Telemark Hospital, Department of Neurology

    RECRUITING

    Skien, Norway

  • University hospital of North Norway, Department of Neurology

    RECRUITING

    Tromsø, Norway

  • Vestfold Hospital Trust, Department of Neurology

    RECRUITING

    Tønsberg, Norway

  • Vestre Viken Hospital Trust, Department of Neurology

    RECRUITING

    Drammen, Norway

  • Østfold Hospital Trust, Department of Neurology

    RECRUITING

    Grålum, Norway

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