Real-World study tracks Alprolix's bleeding control in hemophilia b
NCT ID NCT03901755
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study followed 151 people with hemophilia B who were already using or starting Alprolix, a long-lasting clotting factor. Over 24 months, researchers tracked how often bleeding occurred, how often the drug was injected, and how much was used. The goal was to see how well Alprolix works in real-world conditions, not just in controlled clinical trials.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
Alprolix (a long-lasting clotting factor IX)
What this could lead to
If successful, this study could confirm that Alprolix effectively controls bleeding in real-world settings, supporting its use for managing hemophilia B.
What could go wrong
This is an observational study, not a controlled trial, so results may be influenced by patient differences. It does not test a new treatment, only describes current use.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Swedish Orphan Biovitrum Research Site
Brno, Czechia
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Swedish Orphan Biovitrum Research Site
Prague, Czechia
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Swedish Orphan Biovitrum Research Site
Dublin, Ireland
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Swedish Orphan Biovitrum Research Site
Bari, Italy
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Swedish Orphan Biovitrum Research Site
Florence, Italy
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Swedish Orphan Biovitrum Research Site
Genova, Italy
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Swedish Orphan Biovitrum Research Site
Milan, Italy
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Swedish Orphan Biovitrum Research Site
Roma, Italy
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Swedish Orphan Biovitrum Research Site
Turin, Italy
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Swedish Orphan Biovitrum Research Site
Oslo, Norway
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Swedish Orphan Biovitrum Research Site
Murcia, Spain
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Swedish Orphan Biovitrum Research Site
Vigo, Spain
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Swedish Orphan Biovitrum Research Site
Gothenburg, Sweden
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Swedish Orphan Biovitrum Research Site
Malmö, Sweden
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Swedish Orphan Biovitrum Research Site
Hull, United Kingdom
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Swedish Orphan Biovitrum Research Site
London, NW3 2QG, United Kingdom
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Swedish Orphan Biovitrum Research Site
London, SE1 7EH, United Kingdom
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Swedish Orphan Biovitrum Research Site
London, W12 0HS, United Kingdom
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Swedish Orphan Biovitrum Research Site
London, WC1N 3JH, United Kingdom
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Swedish Orphan Biovitrum Research Site
Manchester, United Kingdom
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Swedish Orphan Biovitrum Research Site
Oxford, United Kingdom
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Swedish Orphan Biovitrum Research Site (Haemophilia Center Aghia Sophia Children's Hospital)
Athens, Greece
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Swedish Orphan Biovitrum Research Site (Hospital Sant Joan de Deu)
Barcelona, Spain
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Swedish Orphan Biovitrum Research Site (Hospital de Vall d'Hebrón)
Barcelona, Spain
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Swedish Orphan Biovitrum Research Site (Karolinska University Hospital adult)
Stockholm, Sweden
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Swedish Orphan Biovitrum Research Site (Karolinska University Hospital pediatric)
Stockholm, Sweden
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Swedish Orphan Biovitrum Research Site (King Faisal Hospital adult)
Riyadh, Saudi Arabia
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Swedish Orphan Biovitrum Research Site (King Faisal Hospital pediatric)
Riyadh, Saudi Arabia
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Swedish Orphan Biovitrum Research Site (Laikο General Hospital of Athens)
Athens, Greece