Massive new registry tracks AL amyloidosis in real time
NCT ID NCT04839003
First seen Apr 18, 2026 · Last updated May 07, 2026 · Updated 2 times
Summary
This study is building a large registry of 5000 people with AL amyloidosis, a rare disease where abnormal proteins build up in organs. Researchers will collect information from medical records and follow-ups to learn how the disease progresses and how current treatments affect it. No new treatments are being tested; the goal is to gather real-world data to improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Fondazione IRCCS Policlinico San Matteo
RECRUITINGPavia, 27100, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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