French launch largest study of rare tumor disease

NCT ID NCT02867033

Ongoing Knowledge-focused Sponsor: Centre Oscar Lambret Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study aims to create the largest French database of people diagnosed with aggressive fibromatosis, a rare tumor that grows in connective tissue. Researchers will collect tissue samples, medical history, and genetic information from 628 participants across France. The goal is to better understand the disease and its links to other conditions like familial adenomatous polyposis.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this research could improve understanding of aggressive fibromatosis and guide future treatment strategies.

What could go wrong

This is an observational study, not a treatment trial. It will not directly test any new therapy, so benefits for patients are indirect and long-term.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

desmoid tumor

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AGGRESSIVE FIBROMATOSIS

Contacts and locations

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Locations

CHU Angers

Angers, 49933, France
CHU Saint-Étienne - Hôpital Nord

Saint-Etienne, 42055, France
CHU Toulouse - Hôpital des Enfants

Toulouse, 31059, France
CHU Tours - Clocheville

Tours, 37044, France
CHU de Besançon

Besançon, 25030, France
CHU de Caen-Côte de Nacre

Caen, 14033, France
CHU de Grenoble- Hôpital Couple Enfant

Grenoble, 38043, France
CHU de Reims

Reims, 51100, France
CHU de Rennes- Hôpital Sud

Rennes, 35023, France
Centre François Baclesse

Caen, 14076, France
Centre Georges François Leclerc

Dijon, 21079, France
Centre Henri Becquerel

Rouen, 76038, France
Centre Jean Perrin

Clermont-Ferrand, 63011, France
Centre Léon Bérard

Lyon, 69373, France
Centre Oscar Lambret

Lille, 59020, France
Hôpital Archet 2

Nice, 06202, France
Hôpital Cochin

Paris, 75014, France
Hôpital Mère Enfant - CHU Nantes

Nantes, 44093, France
Hôpital Privé de la Loire

Saint-Etienne, 42100, France
Hôpital Saint Antoine

Paris, France
Hôpital Saint Louis

Paris, 75010, France
Hôpital d'Enfants- CHU Nancy

Vandœuvre-lès-Nancy, 54511, France
Hôpital des Enfants

Bordeaux, 33076, France
Hôpital la Timone Enfants Service Oncologie Pédiatrique

Marseille, 13005, France
Hôpital la Timone Service Oncologie Médicale

Marseille, 13005, France
Hôpitaux Universitaires de Strasbourg

Strasbourg, 67098, France
Hôpîtal d'Enfants Armand Trousseau

Paris, 75012, France
ICM Val d'Aurelle

Montpellier, 34298, France
Institut Bergonié

Bordeaux, 33076, France
Institut Claudius Régaud

Toulouse, 31059, France
Institut Curie Département Oncologie Médicale

Paris, 75005, France
Institut Curie Département Oncologie Pédiatrique

Paris, 75005, France
Institut Curie-Hôpital René Huguenin

Saint-Cloud, 92210, France
Institut Gustave Roussy

Villejuif, 94800, France
Institut Paoli Calmettes

Marseille, 13273, France
Institut de Cancérologie de Lorraine

Vandœuvre-lès-Nancy, 54519, France
Institut de Cancérologie de l'Ouest - Paul Papin

Angers, 49055, France
Institut de Cancérologie de l'Ouest - Site René Gauducheau

Saint-Herblain, 44805, France
Institut de Cancérologie et d'Hématologie Universitaire de Saint Etienne

Saint-Priest-en-Jarez, France