Swiss registry tracks adults with congenital heart disease to uncover hidden risks

NCT ID NCT02258724

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This registry is following 5,000 adults in Switzerland who were born with heart defects. The goal is to collect data on their long-term health, including complications and treatments. By tracking these patients over time, researchers hope to better understand the challenges they face and improve future care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this registry could provide valuable insights into the long-term health and treatment needs of adults with congenital heart disease.
What could go wrong
This is an observational registry, not a treatment trial. It will not directly test any new therapy, and results may take years to influence clinical practice.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Basel University Hospital

    RECRUITING

    Basel, 4031, Switzerland

  • Bern University Hospital Inselspital

    RECRUITING

    Bern, 3010, Switzerland

  • Centre Hospitalier Universitaire Vaudois CHUV

    RECRUITING

    Lausanne, 1011, Switzerland

  • Hôpitaux Universitaires de Genève HUG

    RECRUITING

    Geneva, 1205, Switzerland

  • Kantonsspital St.Gallen

    RECRUITING

    Sankt Gallen, 9007, Switzerland

  • University Hospital Zurich

    RECRUITING

    Zurich, 8091, Switzerland

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