500 adults with rare genetic condition to be tracked for liver disease clues
NCT ID NCT06512454
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 25 times
Summary
This study follows 500 adults with alpha-1 antitrypsin deficiency (AATD) for up to 5 years to see how their liver disease changes over time without any special treatment. Researchers will collect medical history, yearly questionnaires, and tests to track liver scarring and other complications. The goal is to better understand the disease's natural course and find ways to predict who might get worse or better.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University of Florida
RECRUITINGGainesville, Florida, 32611, United States
Contact Email: •••••@•••••
Contact
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Universitätsklinikum Aachen AöR
RECRUITINGAachen, North Rhine-Westphalia, 52074, Germany
Contact
Contact Email: •••••@•••••
Conditions
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