USHER SYNDROME
Clinical trials for USHER SYNDROME explained in plain language.
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Stem cell eye treatment could restore sight in retinal disease patients
Disease control Recruiting nowThis study tests a new treatment called OpCT-001 for people with inherited eye diseases that damage the retina, such as retinitis pigmentosa. The treatment involves injecting special photoreceptor cells, made from stem cells, into the back of the eye to replace lost cells. The tr…
Matched conditions: USHER SYNDROME
Phase: PHASE1, PHASE2 • Sponsor: BlueRock Therapeutics • Aim: Disease control
Last updated Jun 27, 2026 12:07 UTC
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Thousands join fight against blindness by sharing their stories
Knowledge-focused Recruiting nowThis registry collects information from people with inherited retinal diseases, like retinitis pigmentosa and Stargardt disease. Participants share their symptoms, family history, and genetic test results online. The goal is to help researchers understand these rare diseases and …
Matched conditions: USHER SYNDROME
Sponsor: Foundation Fighting Blindness • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:36 UTC
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Eye zap study seeks to prove what patients already feel
Knowledge-focused Recruiting nowThis study looks at people with retinitis pigmentosa and similar eye diseases who already use a device called OkuStim® that sends mild electrical pulses to the eye. Many patients report temporary improvements in vision right after treatment, but these haven't been measured in a s…
Matched conditions: USHER SYNDROME
Sponsor: Okuvision GmbH • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:28 UTC
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New study aims to map vision decline in rare genetic disorder
Knowledge-focused Recruiting nowThis study follows 60 people with Usher syndrome type 1B, a rare genetic condition causing deafness and progressive vision loss. Researchers will measure how vision changes over time using standard eye tests and new virtual reality tools. No treatment is given; the goal is to bet…
Matched conditions: USHER SYNDROME
Sponsor: Centre Hospitalier National d'Ophtalmologie des Quinze-Vingts • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:03 UTC