New study aims to map vision decline in rare genetic disorder
NCT ID NCT07278843
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 60 people with Usher syndrome type 1B, a rare genetic condition causing deafness and progressive vision loss. Researchers will measure how vision changes over time using standard eye tests and new virtual reality tools. No treatment is given; the goal is to better understand the disease and validate tests for future trials.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for USHER SYNDROME are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Centre National d'Ophtalmologie des Quinze-Vingts
RECRUITINGParis, Île-de-France Region, 75012, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Can an antioxidant pill slow blindness in usher syndrome?
- Newborn screening study aims to catch rare diseases at birth
- Thousands join fight against blindness by sharing their stories
- Eye zap study seeks to prove what patients already feel
- Gene therapy for rare Blindness-Deafness syndrome passes early safety check
- New drug aims to preserve sight in rare genetic blindness