Centre Hospitalier National D'ophtalmologie Des Quinze-vingts

This study is testing whether adding structured emotional and nursing support right after someone is diagnosed with retinitis pigmentosa (RP) improves their experience and mental health. RP is a rare genetic disease that causes progressive vision loss, and receiving the diagnosis…

This study aims to test new, high-tech eye imaging systems that can see microscopic details of the eye, like individual cells and blood flow, which are not visible with standard equipment. Researchers will enroll 1,200 participants, including people with various eye conditions an…

This study aims to understand how vision gets worse over time in people with Usher syndrome type 1B, a rare genetic condition that causes deafness and progressive blindness. Researchers will follow 60 participants for several years, tracking their vision with standard tests and n…