UNDIAGNOSED DISEASE
Clinical trials for UNDIAGNOSED DISEASE explained in plain language.
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Study explores how family and friends impact caregiver health
Knowledge-focused CompletedThis completed study looked at how the social networks of caregivers affect their stress and health when caring for someone with an inherited disease. Researchers surveyed over 680 participants, including family members and formal caregivers, to understand caregiving burden and s…
Matched conditions: UNDIAGNOSED DISEASE
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated Jul 02, 2026 00:00 UTC
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Uncertainty and hope: study explores how parents of undiagnosed children cope
Knowledge-focused CompletedThis study looked at how parents cope when their child has a medical condition that doctors haven't been able to diagnose for at least two years. Researchers surveyed 168 parents to understand how uncertainty affects their ability to cope and how personality traits like optimism …
Matched conditions: UNDIAGNOSED DISEASE
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated Jun 27, 2026 14:00 UTC