UNDIAGNOSED DISEASE
Clinical trials for UNDIAGNOSED DISEASE explained in plain language.
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The hidden struggle: parents face uncertainty when doctors Can't name their Child's illness
Knowledge-focused CompletedThis study aimed to understand how parents cope when their child has a serious medical condition that doctors cannot diagnose. Researchers surveyed 168 parents whose children had undiagnosed illnesses affecting at least two body systems for over two years. The study explored how …
Matched conditions: UNDIAGNOSED DISEASE
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated Mar 23, 2026 15:15 UTC
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Hidden toll: how caring for sick family members impacts health
Knowledge-focused CompletedThis study aimed to understand the stress and health impacts on family members who care for relatives with inherited diseases like Alzheimer's or metabolic disorders. Researchers surveyed and interviewed over 680 caregivers and family members to map their support networks and mea…
Matched conditions: UNDIAGNOSED DISEASE
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated Mar 16, 2026 15:25 UTC