UNDIAGNOSED DISEASE
Clinical trials for UNDIAGNOSED DISEASE explained in plain language.
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Uncertainty and hope: study explores how parents of undiagnosed children cope
Knowledge-focused CompletedThis study looked at how parents of children with undiagnosed medical conditions handle uncertainty. Researchers surveyed 168 parents to understand how their thoughts and feelings about the unknown affect their ability to cope. The goal was to learn which factors, like optimism o…
Matched conditions: UNDIAGNOSED DISEASE
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated May 15, 2026 11:54 UTC
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Study reveals hidden struggles of caregivers for inherited diseases
Knowledge-focused CompletedThis study looked at how family and friends support people caring for someone with an inherited disease. Researchers surveyed over 680 caregivers and family members to understand their stress, worries, and social connections. The goal is to use this information to create better s…
Matched conditions: UNDIAGNOSED DISEASE
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated May 13, 2026 16:04 UTC