Uncertainty and hope: study explores how parents of undiagnosed children cope
NCT ID NCT01905865
First seen Jun 27, 2026 · Last updated Jul 09, 2026 · Updated 3 times
Summary
This study looked at how parents cope when their child has a medical condition that doctors haven't been able to diagnose for at least two years. Researchers surveyed 168 parents to understand how uncertainty affects their ability to cope and how personality traits like optimism play a role. The goal was to learn more about the parents' experience, not to test a treatment.
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Conditions
The condition(s) this trial relates to.
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Locations
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National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, 20892, United States
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