TUBEROUS SCLEROSIS
Clinical trials for TUBEROUS SCLEROSIS explained in plain language.
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Can early parent coaching help infants with rare genetic disorders thrive?
Disease control ENROLLING_BY_INVITATIONThis study tests a program called PIXI that coaches parents of infants diagnosed with rare neurogenetic disorders (such as Fragile X, Angelman, or Down syndrome) during the first year of life. The program combines education about the disorder, guided parent-child interaction acti…
Matched conditions: TUBEROUS SCLEROSIS
Phase: NA • Sponsor: RTI International • Aim: Disease control
Last updated Jul 15, 2026 00:00 UTC
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Can a video-based therapy tame tough behaviors in kids with rare genetic disorders?
Symptom relief OngoingThis study tests a virtual behavioral therapy (Functional Behavioral Training) for children aged 2-12 with genetic syndromes like Fragile X, Angelman, or Rett syndrome who have challenging behaviors. The therapy teaches parents how to identify what triggers problem behaviors and …
Matched conditions: TUBEROUS SCLEROSIS
Phase: NA • Sponsor: Rush University Medical Center • Aim: Symptom relief
Last updated Jul 15, 2026 00:00 UTC
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Brain imaging may unlock early clues to autism in tuberous sclerosis
Knowledge-focused OngoingThis study investigates whether advanced brain imaging and electrical recordings can predict the presence and severity of autism spectrum disorder (ASD) and intellectual disability (ID) in people with tuberous sclerosis complex (TSC). Researchers will follow participants over tim…
Matched conditions: TUBEROUS SCLEROSIS
Sponsor: Boston Children's Hospital • Aim: Knowledge-focused
Last updated Aug 08, 2026 00:03 UTC