RARE DISEASES
Clinical trials for RARE DISEASES explained in plain language.
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Can a social skills class help teens with rare disorders feel less lonely?
Symptom relief CompletedThis study tested a French version of a social skills training program called PEERS for adolescents and young adults (aged 12-30) with rare neurodevelopmental disorders. The goal was to see if improving social skills could help reduce feelings of loneliness, social anxiety, and d…
Matched conditions: RARE DISEASES
Sponsor: Imagine Institute • Aim: Symptom relief
Last updated Mar 30, 2026 14:28 UTC
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Patients speak out: the hidden oral health struggles of rare diseases
Knowledge-focused CompletedThis study aimed to understand how rare diseases affect people's oral health and daily life. Researchers interviewed 28 patients, both children and adults, with various rare conditions at a Paris hospital. The goal was to listen to their personal experiences and challenges, rathe…
Matched conditions: RARE DISEASES
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:34 UTC
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Researchers ask: what do families want to know from genetic tests?
Knowledge-focused CompletedThis study aimed to understand the preferences and experiences of families whose children have rare developmental disorders when receiving results from advanced genetic testing. Researchers surveyed and interviewed over 500 parents in France to learn what kind of information they…
Matched conditions: RARE DISEASES
Phase: NA • Sponsor: Centre Hospitalier Universitaire Dijon • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:30 UTC