RARE DISEASES
Clinical trials for RARE DISEASES explained in plain language.
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Robot companion eases anxiety in rare disease families
Symptom relief CompletedThis study tested whether a social robot named PARO could help children with rare diseases and their parents feel less anxious and stressed, and improve their relationship. Fourteen families completed four sessions where they interacted with the robot together. The results showed…
Matched conditions: RARE DISEASES
Phase: NA • Sponsor: National Yang Ming Chiao Tung University • Aim: Symptom relief
Last updated Jun 27, 2026 12:07 UTC
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What do families think about genetic testing? new study seeks answers
Knowledge-focused CompletedThis completed study from France involved 530 families of children with rare developmental disorders. Researchers used surveys and interviews to understand how families feel about high-throughput genetic sequencing, including unexpected findings. The goal is to improve how doctor…
Matched conditions: RARE DISEASES
Phase: NA • Sponsor: Centre Hospitalier Universitaire Dijon • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:02 UTC
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Can a social skills class help teens with rare disorders avoid depression?
Knowledge-focused CompletedThis study tested a French version of the PEERS social skills program for 64 adolescents and young adults with rare neurodevelopmental disorders. The goal was to see if improving social skills could lower their risk of anxiety and depression. Participants attended the program wit…
Matched conditions: RARE DISEASES
Sponsor: Imagine Institute • Aim: Knowledge-focused
Last updated Jun 27, 2026 07:57 UTC
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Rare disease patients share how oral health shapes their daily lives
Knowledge-focused CompletedThis study interviewed 28 patients with rare diseases at Necker Hospital in Paris to learn how their oral health affects their quality of life. Participants, aged 6 and older, talked with a doctor for 30 to 60 minutes about their experiences and access to dental care. The goal is…
Matched conditions: RARE DISEASES
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Jun 26, 2026 15:58 UTC