RARE DISEASES
Clinical trials for RARE DISEASES explained in plain language.
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Robot companion eases stress in rare disease families
Symptom relief CompletedThis study tested whether a social robot named PARO could help children with rare diseases and their parents feel less anxious and stressed, and improve their relationship. Fourteen families completed four sessions where they interacted with the robot together. The goal was to se…
Matched conditions: RARE DISEASES
Phase: NA • Sponsor: National Yang Ming Chiao Tung University • Aim: Symptom relief
Last updated May 17, 2026 08:03 UTC
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Rare disease patients share oral health struggles in landmark study
Knowledge-focused CompletedThis study interviewed 28 children and adults with rare diseases at Necker Hospital in Paris to understand how their condition affects their oral health and quality of life. Researchers focused on patients' experiences and access to dental care. The goal was to gather insights, n…
Matched conditions: RARE DISEASES
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated May 15, 2026 11:57 UTC
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What do families want to know from genetic tests? study explores preferences
Knowledge-focused CompletedThis study looked at how families of children with rare developmental disorders feel about receiving extra or unclear results from advanced genetic testing. Researchers surveyed and interviewed over 500 parents to understand their preferences and experiences. The goal is to help …
Matched conditions: RARE DISEASES
Phase: NA • Sponsor: Centre Hospitalier Universitaire Dijon • Aim: Knowledge-focused
Last updated May 15, 2026 11:56 UTC
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Can a social skills class help lonely teens with rare disorders?
Knowledge-focused CompletedThis study looked at whether a French version of the PEERS social skills training program helps teenagers and young adults with rare neurodevelopmental disorders improve their social skills. The goal was to reduce loneliness, anxiety, and depression that often come with these con…
Matched conditions: RARE DISEASES
Sponsor: Imagine Institute • Aim: Knowledge-focused
Last updated May 11, 2026 20:51 UTC