Rare disease patients share how oral health shapes their daily lives
NCT ID NCT05070988
First seen Jun 26, 2026 · Last updated Jun 26, 2026 · Updated 1 time
Summary
This study interviewed 28 patients with rare diseases at Necker Hospital in Paris to learn how their oral health affects their quality of life. Participants, aged 6 and older, talked with a doctor for 30 to 60 minutes about their experiences and access to dental care. The goal is to better understand the challenges they face, not to test a treatment.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Hôpital Necker-Enfants Malades
Paris, 75015, France
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