Patients speak out: the hidden oral health struggles of rare diseases
NCT ID NCT05070988
Summary
This study aimed to understand how rare diseases affect people's oral health and daily life. Researchers interviewed 28 patients, both children and adults, with various rare conditions at a Paris hospital. The goal was to listen to their personal experiences and challenges, rather than test a treatment.
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Contacts and locations
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Locations
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Hôpital Necker-Enfants Malades
Paris, 75015, France
Conditions
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