NETHERTON SYNDROME
Clinical trials for NETHERTON SYNDROME explained in plain language.
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Experimental injection tested for devastating skin disease
Disease control TerminatedThis study tested whether a medicine called spesolimab could help people with Netherton syndrome, a rare and severe genetic skin disorder. Participants aged 12 and older received either spesolimab or a placebo injection for 4 months, after which everyone could receive the active …
Matched conditions: NETHERTON SYNDROME
Phase: PHASE2, PHASE3 • Sponsor: Boehringer Ingelheim • Aim: Disease control
Last updated Mar 30, 2026 14:34 UTC
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Researchers track rare skin disease without treatment
Knowledge-focused TerminatedThis study aimed to collect real-world information about how Netherton Syndrome naturally progresses over time. Researchers planned to observe 12 patients with this rare genetic skin condition for up to 52 weeks, measuring their symptoms without providing any treatment. The goal …
Matched conditions: NETHERTON SYNDROME
Sponsor: Boehringer Ingelheim • Aim: Knowledge-focused
Last updated Apr 02, 2026 09:11 UTC