Researchers track rare skin disease without treatment
NCT ID NCT05902663
Summary
This study aimed to collect real-world information about how Netherton Syndrome naturally progresses over time. Researchers planned to observe 12 patients with this rare genetic skin condition for up to 52 weeks, measuring their symptoms without providing any treatment. The goal was to better understand the disease's typical course to help future research.
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Contacts and locations
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Locations
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Istituto Dermopatico Dell'Immacolata - IDI - IRCCS
Roma, 00167, Italy
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Mission Dermatology Center
Rancho Santa Margarita, California, 92688, United States
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Northwestern University
Chicago, Illinois, 60611, United States
Conditions
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