Rare skin disease study seeks to understand netherton syndrome
NCT ID NCT05902663
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study aimed to collect real-world data on Netherton Syndrome, a rare genetic skin disorder. Researchers planned to follow 4 participants over 52 weeks, measuring skin severity and other symptoms. The study was terminated early, so results are limited.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Istituto Dermopatico Dell'Immacolata - IDI - IRCCS
Roma, 00167, Italy
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Mission Dermatology Center
Rancho Santa Margarita, California, 92688, United States
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Northwestern University
Chicago, Illinois, 60611, United States
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Other studies related to the condition(s) this trial covers.
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