Rare skin disease study aims to map its natural course
NCT ID NCT05902663
First seen Nov 01, 2025 · Last updated May 11, 2026 · Updated 28 times
Summary
This study looked at people with Netherton Syndrome, a rare genetic skin condition, to track how the disease progresses naturally without any experimental treatment. Researchers measured skin redness and scaling using standard scores. The goal was to better understand the disease to help design future studies.
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This is a summary of
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Istituto Dermopatico Dell'Immacolata - IDI - IRCCS
Roma, 00167, Italy
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Mission Dermatology Center
Rancho Santa Margarita, California, 92688, United States
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Northwestern University
Chicago, Illinois, 60611, United States
Conditions
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