MYELOMENINGOCELE

This study is testing a new material—a patch made from donated umbilical cord tissue—to repair spina bifida in unborn babies. The goal is to create a watertight seal over the spinal cord defect during a special prenatal surgery. Researchers hope this will lower the risk of seriou…

This study is testing a less invasive 'keyhole' surgery to repair spina bifida in unborn babies. It aims to provide the same benefits to the baby as traditional open fetal surgery—like potentially reducing brain complications and improving movement—while lowering serious risks fo…

This study is creating and testing a smartphone app designed to help children and teenagers with spina bifida work with their doctors to set personal goals for managing bladder and bowel incontinence. The app aims to shift the focus from standard medical targets to what matters m…

This study looks back at medical records of 60 newborns who had surgery for a spinal cord defect called meningomyelocele. Researchers want to see if removing the breathing tube right after surgery in the operating room leads to better recovery than removing it later in the intens…

This study aims to understand if sleep-related breathing problems are different for infants with severe spina bifida who had surgery before birth versus after birth. It will also check if these breathing issues are linked to how a child's thinking and movement skills develop by a…