HEREDITARY HEMORRHAGIC TELANGIECTASIA
Clinical trials for HEREDITARY HEMORRHAGIC TELANGIECTASIA explained in plain language.
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Can a transplant drug stop HHT nosebleeds? small study tests sirolimus
Disease control CompletedThis small pilot study tested the safety and effectiveness of the oral drug sirolimus for reducing nosebleeds in people with hereditary hemorrhagic telangiectasia (HHT). Ten adults with moderate to severe nosebleeds took 2 mg of sirolimus daily for 3 months. Researchers tracked b…
Matched conditions: HEREDITARY HEMORRHAGIC TELANGIECTASIA
Phase: PHASE2 • Sponsor: Unity Health Toronto • Aim: Disease control
Last updated Jun 27, 2026 13:02 UTC
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New ultra-low-dose CT scan aims to protect kids with rare blood vessel disorder
Diagnosis CompletedThis study tested a new ultra-low-dose chest CT technique in 3 children (ages 1-17) with hereditary hemorrhagic telangiectasia (HHT) to see if it could detect abnormal blood vessels in the lungs (PAVMs) using much less radiation than standard CT. The goal was to find the lowest p…
Matched conditions: HEREDITARY HEMORRHAGIC TELANGIECTASIA
Sponsor: Mayo Clinic • Aim: Diagnosis
Last updated Jun 27, 2026 12:23 UTC
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Large study aims to predict brain bleeds in rare HHT disorder
Knowledge-focused CompletedThis study looked at over 2,200 people with hereditary hemorrhagic telangiectasia (HHT), a rare condition that causes abnormal blood vessels. The goal was to find out what makes some people with HHT more likely to have a brain bleed. Researchers collected health information, bloo…
Matched conditions: HEREDITARY HEMORRHAGIC TELANGIECTASIA
Sponsor: Unity Health Toronto • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:23 UTC
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Exercise echo may catch silent heart failure in rare HHT liver disease
Knowledge-focused CompletedThis completed pilot study looked at 47 adults with hereditary hemorrhagic telangiectasia (HHT) who also have liver involvement. Researchers used exercise echocardiography (heart ultrasound while pedaling) to measure lung artery pressure during exercise. The goal was to see if th…
Matched conditions: HEREDITARY HEMORRHAGIC TELANGIECTASIA
Phase: NA • Sponsor: Hospices Civils de Lyon • Aim: Knowledge-focused
Last updated Jun 27, 2026 08:05 UTC