FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Clinical trials for FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY explained in plain language.
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Breakthrough drug trial offers hope for rare muscle disease
Disease control Recruiting nowThis study is testing an experimental drug called AOC 1020 for people with facioscapulohumeral muscular dystrophy (FSHD), a genetic condition that causes progressive muscle weakness. About 200 participants will receive either the drug or a placebo via IV infusion every six weeks …
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE3 • Sponsor: Avidity Biosciences, Inc. • Aim: Disease control
Last updated Mar 30, 2026 14:32 UTC
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First human trial tests cord stem cells against rare Muscle-Wasting disease
Disease control Recruiting nowThis early-stage study is testing whether stem cells from umbilical cord linings are safe and might help people with facioscapulohumeral muscular dystrophy (FSHD), a genetic condition that weakens muscles. Sixteen participants with moderate FSHD will receive four IV infusions ove…
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE1 • Sponsor: Restem, LLC. • Aim: Disease control
Last updated Mar 16, 2026 15:26 UTC
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Patients unite to power FSHD research through new national registry
Knowledge-focused Recruiting nowBetterLife FSHD is a patient-driven registry and online platform for people with Facioscapulohumeral Muscular Dystrophy (FSHD). It aims to collect health and experience data from up to 5,000 participants through regular surveys to help researchers better understand the disease. T…
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated Mar 13, 2026 15:06 UTC