Researchers gather data to map rare genetic disease
NCT ID NCT05955014
Summary
This study aims to collect health information from people with Von Hippel Lindau (vHL) disease, a rare genetic condition. Researchers will track how the disease develops over time, what treatments patients receive, and how it affects their quality of life. The goal is to better understand the disease patterns and patient experiences to help guide future care.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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M D Anderson Cancer Center
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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