Scientists gather data to map rare genetic disease journey
NCT ID NCT05955014
Summary
This study aims to collect information from patients with Von Hippel Lindau (vHL) disease to better understand how the disease develops over time. Researchers will track tumor growth, treatment history, and quality of life in 125 participants. The goal is to identify patterns that could help improve future care for people with this rare genetic condition.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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M D Anderson Cancer Center
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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