Scientists gather data to map rare genetic disease journey

NCT ID NCT05955014

Summary

This study aims to collect information from patients with Von Hippel Lindau (vHL) disease to better understand how the disease develops over time. Researchers will track tumor growth, treatment history, and quality of life in 125 participants. The goal is to identify patterns that could help improve future care for people with this rare genetic condition.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • M D Anderson Cancer Center

    RECRUITING

    Houston, Texas, 77030, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.