Video replays of doctor visits may boost quality of life for ALS patients
NCT ID NCT07454733
First seen Mar 07, 2026 · Last updated Jun 18, 2026 · Updated 16 times
Summary
This study looks at whether giving people with ALS and their caregivers video recordings of their clinic visits helps them feel better and manage care more easily. About 800 participants (400 patient-caregiver pairs) from eight U.S. sites will be split into two groups: one gets standard written visit summaries, and the other gets both written summaries and video recordings they can watch at home. The goal is to see if the video group reports better quality of life over 12 months.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Dartmouth-Hitchcock Health
Lebanon, New Hampshire, 03756, United States
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Massachusetts General Hospital
Boston, Massachusetts, 021114, United States
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Mayo Clinic Jacksonville
Jacksonville, Florida, 32224, United States
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Mayo Clinic Scottsdale
Scottsdale, Arizona, 85259, United States
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Penn State Health Milton S. Hersey Medical Center
Hershey, Pennsylvania, 17033, United States
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University of Pittsburgh Medical Center
Pittsburgh, Pennsylvania, 15213, United States
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University of Wisconsin Health
Madison, Wisconsin, 53792, United States
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.