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Video tool aims to give parents a voice in pediatric cancer decisions

NCT ID NCT06786104

Symptom relief Sponsor: Massachusetts General Hospital Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study tests whether a video and a trained navigator can help parents of children with cancer better communicate their goals and values to the medical team. About 567 parents will either get the video tool or usual care. The goal is to see if this leads to more discussions about care preferences, less aggressive end-of-life treatments, and greater parent satisfaction.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
video decision aid and navigator intervention
What this could lead to
If it works, this could help parents feel more heard and ensure children's care matches family values.
What could go wrong
This is an early-stage study testing communication tools, not a treatment. Results may not change medical outcomes or apply to all families.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

About 567 people

The number the study aims to enrol. It can still change while the study runs.

Started

May 2026

Expected to finish

Apr 2030

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

Children (under 18), adults (18 to 64) and older adults (65 and over)

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: Patient * Age 0-12 years * Diagnosed with any type or stage of cancer * Receiving cancer directed treatment Parent * Decision maker for the child. * Biological parent, step-parent, legal guardian (e.g., adoptive parent), or grandparent with medical consent authority. * Has a child meeting the child inclusion criteria listed above. * Able to communicate in English or Spanish (the languages of the video decision aids). Exclusion Criteria: Patient * Not receiving primary medical care from the cancer clinic (e.g., second-opinion consultations only) * Already referred to and fully consulted by the palliative care team * Prognosis of less than a 2-month life expectancy Parent * Visually impaired beyond 20/200 corrected and unable to view the video (note: hearing impaired is not an exclusion as the videos are closed captioned). * Psychological state not appropriate for GOC discussions, as determined by the primary oncologist per the opt-out. * Participants who do not speak English or Spanish

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Conditions

The condition(s) this trial relates to.

childhood malignant neoplasm Death neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Pediatric cancer

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    3 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Children's Hospital of Atlanta

    RECRUITING

    Atlanta, Georgia, 30342, United States

  • Children's of Alabama at Birmingham

    RECRUITING

    Birmingham, Alabama, 35233, United States

  • Dana Farber Cancer Institute

    RECRUITING

    Boston, Massachusetts, 02215, United States

  • Dartmouth Hitchcock Medical Center

    ACTIVE_NOT_RECRUITING

    Lebanon, New Hampshire, 03756, United States

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