New VEXAS registry aims to crack the code of this rare inflammatory disease
NCT ID NCT06377462
First seen Oct 31, 2025 · Last updated May 22, 2026 · Updated 34 times
Summary
This study is building a national registry of 500 adults with VEXAS syndrome, a rare inflammatory disease. Researchers will collect medical information and biological samples during routine care to learn more about how the disease behaves, what treatments work best, and to find biomarkers. The goal is to better understand VEXAS and improve future diagnosis and care.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Evang. Kliniken Essen-Mitte
RECRUITINGEssen, Germany
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Helios Kliniken Schwerin GmbH
RECRUITINGSchwerin, Germany
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Klinikum Chemnitz gGmbH
RECRUITINGChemnitz, Germany
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Klinikum Nürnberg, Campus Nord
RECRUITINGNuremberg, Germany
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Klinikum Osnabrück GmbH
RECRUITINGOsnabrück, Germany
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Klinikum rechts der Isar TUM
RECRUITINGMünchen, Germany
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Krankenhaus der Barmherzigen Brüder
RECRUITINGTrier, Germany
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Robert Bosch Gesellschaft für Medizinische Forschung mb
RECRUITINGStuttgart, Germany
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Universitätsklinikum Aachen
RECRUITINGAachen, Germany
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Universitätsklinikum Carl Gustav Carus
RECRUITINGDresden, 01307, Germany
Contact
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Universitätsklinikum Düsseldorf
RECRUITINGDüsseldorf, Germany
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Universitätsklinikum Hamburg-Eppendorf
RECRUITINGHamburg, Germany
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Universitätsklinikum Jena
RECRUITINGJena, Germany
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Universitätsklinikum Leipzig AöR
RECRUITINGLeipzig, Germany
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Universitätsklinikum Tübingen
RECRUITINGTübingen, Germany
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Universitätsmedizin Göttingen
RECRUITINGGöttingen, Germany
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Universitätsmedizin Mannheim
RECRUITINGMannheim, Germany
Conditions
Explore the condition pages connected to this study.