New registry aims to unlock secrets of rare VEXAS syndrome
NCT ID NCT06377462
First seen Oct 31, 2025 · Last updated May 15, 2026 · Updated 32 times
Summary
This study will gather real-world information from 500 adults with VEXAS syndrome across Germany. Researchers will track symptoms, treatments, and disease patterns, and collect blood or tissue samples to study genetic links and find better ways to diagnose and monitor the condition. The goal is to improve understanding and care for this rare inflammatory disease.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Evang. Kliniken Essen-Mitte
RECRUITINGEssen, Germany
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Helios Kliniken Schwerin GmbH
RECRUITINGSchwerin, Germany
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Klinikum Chemnitz gGmbH
RECRUITINGChemnitz, Germany
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Klinikum Nürnberg, Campus Nord
RECRUITINGNuremberg, Germany
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Klinikum Osnabrück GmbH
RECRUITINGOsnabrück, Germany
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Klinikum rechts der Isar TUM
RECRUITINGMünchen, Germany
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Krankenhaus der Barmherzigen Brüder
RECRUITINGTrier, Germany
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Robert Bosch Gesellschaft für Medizinische Forschung mb
RECRUITINGStuttgart, Germany
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Universitätsklinikum Aachen
RECRUITINGAachen, Germany
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Universitätsklinikum Carl Gustav Carus
RECRUITINGDresden, 01307, Germany
Contact
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Universitätsklinikum Düsseldorf
RECRUITINGDüsseldorf, Germany
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Universitätsklinikum Hamburg-Eppendorf
RECRUITINGHamburg, Germany
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Universitätsklinikum Jena
RECRUITINGJena, Germany
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Universitätsklinikum Leipzig AöR
RECRUITINGLeipzig, Germany
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Universitätsklinikum Tübingen
RECRUITINGTübingen, Germany
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Universitätsmedizin Göttingen
RECRUITINGGöttingen, Germany
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Universitätsmedizin Mannheim
RECRUITINGMannheim, Germany
Conditions
Explore the condition pages connected to this study.