Major study tracks rare blood vessel disorder to improve patient outcomes
NCT ID NCT05976841
First seen Feb 19, 2026 · Last updated May 24, 2026 · Updated 15 times
Summary
This study follows 340 people with vascular Ehlers-Danlos syndrome (vEDS), a rare genetic condition that weakens blood vessels and organs. Researchers are observing how the disease unfolds over time, including complications like artery tears, digestive issues, and pregnancy risks. The goal is to better understand the disease's natural course to guide future care and treatment.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for EHLERS-DANLOS SYNDROME, VASCULAR TYPE are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Locations
-
Centre Hospitalier Universitaire Angers
Angers, France
-
Hôpital Brabois
Nancy, France
-
Hôpital Claude Huriez
Lille, France
-
Hôpital Côte de Nacre
Caen, France
-
Hôpital Edouard Herriot
Lyon, France
-
Hôpital Européen Georges Pompidou
Paris, France
-
Hôpital Femme Mère Enfant
Lyon, France
-
Hôpital Gabriel Montpied
Clermont-Ferrand, France
-
Hôpital Hôtel Dieu
Nantes, France
-
Hôpital Michallon
Grenoble, France
-
Hôpital Nord
Saint-Etienne, France
-
Hôpital Rangueil
Toulouse, France
-
Hôpital Saint-André
Bordeaux, France
-
Hôpital Saint-Eloi
Montpellier, France
-
Hôpital Trousseau
Tours, France
-
Hôpital de la Cavale Blanche
Brest, France
-
Hôpital de la Timone
Marseille, France
Conditions
Explore the condition pages connected to this study.