Scientists track rare blood vessel disorder to uncover its secrets

NCT ID NCT05976841

Ongoing Knowledge-focused Sponsor: Institut National de la Santé Et de la Recherche Médicale, France Source: ClinicalTrials.gov ↗

First seen Feb 19, 2026 · Last updated May 14, 2026 · Updated 12 times

Summary

This study follows 340 people with vascular Ehlers-Danlos syndrome (vEDS), a rare genetic condition that weakens blood vessels and organs. Researchers will track complications like artery tears, digestive issues, and pregnancy risks to better understand how the disease progresses. The goal is to improve care and quality of life for those affected.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Show contact details

Locations

Centre Hospitalier Universitaire Angers

Angers, France
Hôpital Brabois

Nancy, France
Hôpital Claude Huriez

Lille, France
Hôpital Côte de Nacre

Caen, France
Hôpital Edouard Herriot

Lyon, France
Hôpital Européen Georges Pompidou

Paris, France
Hôpital Femme Mère Enfant

Lyon, France
Hôpital Gabriel Montpied

Clermont-Ferrand, France
Hôpital Hôtel Dieu

Nantes, France
Hôpital Michallon

Grenoble, France
Hôpital Nord

Saint-Etienne, France
Hôpital Rangueil

Toulouse, France
Hôpital Saint-André

Bordeaux, France
Hôpital Saint-Eloi

Montpellier, France
Hôpital Trousseau

Tours, France
Hôpital de la Cavale Blanche

Brest, France
Hôpital de la Timone

Marseille, France

Conditions

Explore the condition pages connected to this study.

EHLERS-DANLOS SYNDROME, VASCULAR TYPE