Swiss launch major registry to track rare muscle diseases
NCT ID NCT05102916
First seen Jan 20, 2026 · Last updated May 25, 2026 · Updated 12 times
Summary
This study is a registry that collects health information from people in Switzerland who have neuromuscular disorders like SMA, Duchenne, and Becker muscular dystrophy. The goal is to track their health over time to help improve treatments and care. Up to 2000 children and adults can join by giving consent.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cantonal Hospital Aarau
RECRUITINGAarau, Canton of Aargau, Switzerland
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Cantonal Hospital of Eastern Switzerland
RECRUITINGSankt Gallen, Switzerland
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Cantonal Hospital of Lucerne LUKS
RECRUITINGLucerne, Switzerland
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Cantonal Hospital of Lucerne, LUKS
RECRUITINGLucerne, Switzerland
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Children's Hospital of Eastern Switzerland
RECRUITINGSankt Gallen, Switzerland
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Inselspital Bern
RECRUITINGBern, Switzerland
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Inselspital Bern, Children's Hospital
RECRUITINGBern, Switzerland
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Institute of Social and Preventive Medicine (ISPM), University of Bern
RECRUITINGBern, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano
RECRUITINGLugano, Canton Ticino, Switzerland
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Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
RECRUITINGBellinzona, Canton Ticino, Switzerland
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Private Practice Alpenquai
RECRUITINGLucerne, Switzerland
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University Children's Hospital Basel
RECRUITINGBasel, Switzerland
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University Hospital Basel
RECRUITINGBasel, Switzerland
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University Hospital Lausanne CHUV
RECRUITINGLausanne, Vaude, Switzerland
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University Hospital Lausanne CHUV, Children's Hospital
RECRUITINGLausanne, Vaude, Switzerland
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University Hospital Zuerich
RECRUITINGZurich, Switzerland
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University Hospital Zuerich, Children's Hospital
RECRUITINGZurich, Switzerland
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University Hospitals of Geneva
RECRUITINGGeneva, Switzerland
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University Hospitals of Geneva, Children's Hospital
RECRUITINGGeneva, Switzerland
Contact
Conditions
Explore the condition pages connected to this study.