Swiss database tracks rare muscle diseases to speed up new treatments
NCT ID NCT05102916
Summary
This project is a national registry in Switzerland that collects health information from people with rare neuromuscular diseases like Duchenne muscular dystrophy and spinal muscular atrophy. It aims to connect patients to new treatment trials, help researchers understand these diseases better, and improve care standards. The registry does not provide treatment itself but gathers data to support future medical research and patient services.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for SMA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Cantonal Hospital Aarau
RECRUITINGAarau, Canton of Aargau, Switzerland
Contact
-
Cantonal Hospital of Eastern Switzerland
RECRUITINGSankt Gallen, Switzerland
Contact
-
Cantonal Hospital of Lucerne LUKS
RECRUITINGLucerne, Switzerland
Contact
-
Cantonal Hospital of Lucerne, LUKS
RECRUITINGLucerne, Switzerland
Contact
-
Children's Hospital of Eastern Switzerland
RECRUITINGSankt Gallen, Switzerland
Contact
-
Inselspital Bern
RECRUITINGBern, Switzerland
Contact
-
Inselspital Bern, Children's Hospital
RECRUITINGBern, Switzerland
Contact
-
Institute of Social and Preventive Medicine (ISPM), University of Bern
RECRUITINGBern, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano
RECRUITINGLugano, Canton Ticino, Switzerland
Contact
-
Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
RECRUITINGBellinzona, Canton Ticino, Switzerland
Contact
-
Private Practice Alpenquai
RECRUITINGLucerne, Switzerland
Contact
-
University Children's Hospital Basel
RECRUITINGBasel, Switzerland
Contact
-
University Hospital Basel
RECRUITINGBasel, Switzerland
Contact
-
University Hospital Lausanne CHUV
RECRUITINGLausanne, Vaude, Switzerland
Contact
-
University Hospital Lausanne CHUV, Children's Hospital
RECRUITINGLausanne, Vaude, Switzerland
Contact
-
University Hospital Zuerich
RECRUITINGZurich, Switzerland
Contact
-
University Hospital Zuerich, Children's Hospital
RECRUITINGZurich, Switzerland
Contact
-
University Hospitals of Geneva
RECRUITINGGeneva, Switzerland
Contact
-
University Hospitals of Geneva, Children's Hospital
RECRUITINGGeneva, Switzerland
Contact
Conditions
Explore the condition pages connected to this study.