Swiss launch major registry to track rare muscle diseases
NCT ID NCT05102916
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study is a registry that collects health information from people in Switzerland who have neuromuscular disorders like SMA, DMD, BMD, and others. It aims to track symptoms, treatments, and outcomes over time to help researchers and doctors improve care. No new treatments are being tested; instead, the registry gathers real-world data to support future research and therapy access.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for BECKER MUSCULAR DYSTROPHY are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Cantonal Hospital Aarau
RECRUITINGAarau, Canton of Aargau, Switzerland
-
Cantonal Hospital of Eastern Switzerland
RECRUITINGSankt Gallen, Switzerland
-
Cantonal Hospital of Lucerne LUKS
RECRUITINGLucerne, Switzerland
-
Cantonal Hospital of Lucerne, LUKS
RECRUITINGLucerne, Switzerland
-
Children's Hospital of Eastern Switzerland
RECRUITINGSankt Gallen, Switzerland
-
Inselspital Bern
RECRUITINGBern, Switzerland
-
Inselspital Bern, Children's Hospital
RECRUITINGBern, Switzerland
-
Institute of Social and Preventive Medicine (ISPM), University of Bern
RECRUITINGBern, Switzerland
-
Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano
RECRUITINGLugano, Canton Ticino, Switzerland
-
Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
RECRUITINGBellinzona, Canton Ticino, Switzerland
-
Private Practice Alpenquai
RECRUITINGLucerne, Switzerland
-
University Children's Hospital Basel
RECRUITINGBasel, Switzerland
-
University Hospital Basel
RECRUITINGBasel, Switzerland
-
University Hospital Lausanne CHUV
RECRUITINGLausanne, Vaude, Switzerland
-
University Hospital Lausanne CHUV, Children's Hospital
RECRUITINGLausanne, Vaude, Switzerland
-
University Hospital Zuerich
RECRUITINGZurich, Switzerland
-
University Hospital Zuerich, Children's Hospital
RECRUITINGZurich, Switzerland
-
University Hospitals of Geneva
RECRUITINGGeneva, Switzerland
-
University Hospitals of Geneva, Children's Hospital
RECRUITINGGeneva, Switzerland
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Can brain scans unlock hidden effects of becker muscular dystrophy?
- Can a targeted infusion slow muscle decline in duchenne? a new trial aims to find out.
- Can gene therapy help babies with SMA reach milestones? a Real-World review
- Can a massive patient database unlock new treatments for muscular dystrophy?
- School transitions put to the test for children with a rare muscle disease
- Horseback therapy may boost movement and breathing in kids with Muscle-Weakening disease