Swiss launch major registry to track rare muscle diseases
NCT ID NCT05102916
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study is a registry that collects health information from people in Switzerland who have neuromuscular disorders like SMA, DMD, BMD, and others. It aims to track symptoms, treatments, and outcomes over time to help researchers and doctors improve care. No new treatments are being tested; instead, the registry gathers real-world data to support future research and therapy access.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cantonal Hospital Aarau
RECRUITINGAarau, Canton of Aargau, Switzerland
Contact
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Cantonal Hospital of Eastern Switzerland
RECRUITINGSankt Gallen, Switzerland
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Cantonal Hospital of Lucerne LUKS
RECRUITINGLucerne, Switzerland
Contact
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Cantonal Hospital of Lucerne, LUKS
RECRUITINGLucerne, Switzerland
Contact
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Children's Hospital of Eastern Switzerland
RECRUITINGSankt Gallen, Switzerland
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Inselspital Bern
RECRUITINGBern, Switzerland
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Inselspital Bern, Children's Hospital
RECRUITINGBern, Switzerland
Contact
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Institute of Social and Preventive Medicine (ISPM), University of Bern
RECRUITINGBern, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano
RECRUITINGLugano, Canton Ticino, Switzerland
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Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
RECRUITINGBellinzona, Canton Ticino, Switzerland
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Private Practice Alpenquai
RECRUITINGLucerne, Switzerland
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University Children's Hospital Basel
RECRUITINGBasel, Switzerland
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University Hospital Basel
RECRUITINGBasel, Switzerland
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University Hospital Lausanne CHUV
RECRUITINGLausanne, Vaude, Switzerland
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University Hospital Lausanne CHUV, Children's Hospital
RECRUITINGLausanne, Vaude, Switzerland
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University Hospital Zuerich
RECRUITINGZurich, Switzerland
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University Hospital Zuerich, Children's Hospital
RECRUITINGZurich, Switzerland
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University Hospitals of Geneva
RECRUITINGGeneva, Switzerland
Contact
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University Hospitals of Geneva, Children's Hospital
RECRUITINGGeneva, Switzerland
Contact