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School transitions put to the test for children with a rare muscle disease

NCT ID NCT07720518

Not yet recruiting Knowledge-focused Sponsor: Robert Jones and Agnes Hunt Orthopaedic and District NHS Trust Source: ClinicalTrials.gov ↗

First seen Jul 22, 2026 · Last updated Jul 23, 2026 · Updated 1 time

Summary

This study uses questionnaires and focus groups to understand the challenges children with spinal muscular atrophy (SMA) and their families face when moving between schools or starting a new educational stage. Researchers aim to identify barriers to inclusion and support, and to develop practical guidance for smoother transitions. The study involves up to 20 families of children with SMA who are currently in primary, secondary, or further education.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this could lead to better guidance for schools and healthcare teams to support children with SMA during educational transitions.
What could go wrong
This is a small, qualitative study with only 20 participants, so findings may not apply to all families or school settings.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

spinal muscular atrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

SPINAL MUSCULAR ATROPHY

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • The Robert Jones & Agnes Hunt Orthopaedic Hospital

    Oswestry, Shropshire, SY10 7AG, United Kingdom

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