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Decades after childhood cancer: what Survivors' health reveals

NCT ID NCT03297034

Knowledge-focused Sponsor: University of Bern Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 29, 2026 · Last updated Jun 30, 2026 · Updated 1 time

Summary

This study follows people who survived childhood cancer for at least five years to learn about the long-term effects of the disease and its treatment. Researchers send questionnaires to survivors to gather information on quality of life, physical and mental health, medication use, and education. The goal is to use these findings to improve follow-up care and treatment for future patients.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this research could help doctors better understand and manage the long-term health and quality-of-life issues faced by childhood cancer survivors.
What could go wrong
This is an observational study, not a treatment trial. It cannot directly improve outcomes, and results may not apply to all survivors.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 4,136 people

The number the study aims to enrol. It can still change while the study runs.

Started

Jan 2007

Expected to finish

Jan 2050

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Childhood cancer survivors: All living individuals who were diagnosed with cancer at age \<20 years, have survived at least 5 years after cancer diagnosis, and who were Swiss residents when they were diagnosed. Siblings: brothers and sisters of childhood cancer survivors.

Ages

5 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Who were diagnosed with cancer at age \<20 years * Who have survived at least 5 years after cancer diagnosis * Who were Swiss residents when they were diagnosed, and * Who gave informed consent

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Conditions

The condition(s) this trial relates to.

childhood malignant neoplasm neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Childhood cancer

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    1 site. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Institute of Social and Preventive Medicine (ISPM), University of Bern

    RECRUITING

    Bern, Canton of Bern, 3012, Switzerland

More trials for these conditions

Other studies related to the condition(s) this trial covers.