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Massive swiss CP registry aims to unlock better treatments

NCT ID NCT04992871

Knowledge-focused Sponsor: University of Bern Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This registry collects information from up to 15,000 people with cerebral palsy in Switzerland, tracking their diagnosis, treatments, and outcomes over time. Researchers will use this data to study the condition and improve care. Participants must have a confirmed CP diagnosis and live in Switzerland.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this registry could provide valuable insights to improve treatments and quality of life for people with cerebral palsy.
What could go wrong
This is an observational registry, not a treatment trial. It collects data but does not test any intervention, so direct benefits for participants are unlikely.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 15,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Jun 2017

Expected to finish

Jan 2071

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

All individuals living, born, or treated with a diagnosis of cerebral palsy in Switzerland

Ages

0 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Who were diagnosed with CP, confirmation of the diagnosis at the age of 5 years is required * Who are born, treated for CP or living in Switzerland, and * Who gave informed consent Exclusion Criteria: * Pure muscular hypotonia * Neurometabolic diseases (e.g. neuronal storage diseases, leukodystrophies) * Other progressive neurological diseases (e.g. spinocerebellar ataxias, hereditary spastic paraplegia, Rett syndrome, epileptic encephalopathy)

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Conditions

The condition(s) this trial relates to.

cerebral palsy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Cerebral palsy

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    12 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Aarau Cantonal Hospital

    RECRUITING

    Aarau, Switzerland

  • Children's Hospital of Eastern Switzerland

    RECRUITING

    Sankt Gallen, Switzerland

  • Institute of Social and Preventive Medicine (ISPM), University of Bern

    RECRUITING

    Bern, Switzerland

  • Lucerne Cantonal Hospital

    RECRUITING

    Lucerne, Switzerland

  • Pediatric Institute of Southern Switzerland, Ospedale San Giovanni

    RECRUITING

    Bellinzona, Switzerland

  • University Children's Hospital Basel, UKBB

    RECRUITING

    Basel, Switzerland

  • University Children's Hospital Bern, Inselspital

    RECRUITING

    Bern, Switzerland

  • University Children's Hospital Zurich

    RECRUITING

    Zurich, Switzerland

  • University Children's hospital Lausane, CHUV

    RECRUITING

    Lausanne, Switzerland

  • University Hospitals of Geneva

    RECRUITING

    Geneva, Switzerland

  • Zentrum für Entwicklungsförderung und pädiatrische Neurorehabilitation

    RECRUITING

    Biel, Switzerland

  • Zentrum für Kinder mit Sinnes- und Körperbeeinträchtigung

    RECRUITING

    Solothurn, Switzerland

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