New study seeks clues to rare brain disorder
NCT ID NCT01425944
First seen Mar 02, 2026 · Last updated May 21, 2026 · Updated 14 times
Summary
This study is for people with Sturge-Weber syndrome, a rare condition that affects the brain and skin. Researchers want to learn more about how the disease progresses by looking at genetic markers, blood vessel changes, and urine factors. The goal is to improve care and predict outcomes for the 600 participants involved.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Locations
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Baylor College of Medicine/Texas Children's Hospital
Houston, Texas, 77030, United States
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Cincinnati Children's Hospital
Cincinnati, Ohio, 45229, United States
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Kennedy Krieger Institute
Baltimore, Maryland, 21205, United States
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Nationwide Children's Hospital
Columbus, Ohio, 43205, United States
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New York University
New York, New York, 10016, United States
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Wayne State University/Children's Hospital of Michigan
Detroit, Michigan, 48201, United States
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Wills Eye Institute
Philadelphia, Pennsylvania, 19107, United States
Conditions
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