New study seeks clues to rare brain disorder
NCT ID NCT01425944
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looks at 600 people with Sturge-Weber syndrome, a rare condition that affects the brain and skin. Researchers want to find out what causes the disease to get worse over time. They will study genes, blood vessel changes, and substances in urine to better predict and manage the condition.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for STURGE-WEBER SYNDROME are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Baylor College of Medicine/Texas Children's Hospital
Houston, Texas, 77030, United States
-
Cincinnati Children's Hospital
Cincinnati, Ohio, 45229, United States
-
Kennedy Krieger Institute
Baltimore, Maryland, 21205, United States
-
Nationwide Children's Hospital
Columbus, Ohio, 43205, United States
-
New York University
New York, New York, 10016, United States
-
Wayne State University/Children's Hospital of Michigan
Detroit, Michigan, 48201, United States
-
Wills Eye Institute
Philadelphia, Pennsylvania, 19107, United States