Massive sickle cell study aims to unlock secrets of organ failure
NCT ID NCT02098863
First seen Oct 31, 2025 · Last updated Apr 30, 2026 · Updated 30 times
Summary
This study follows up to 10,000 people with sickle cell disease over many years, collecting health data and blood samples during regular clinic visits. The goal is to learn how the disease damages organs over time and how treatments like hydroxyurea affect long-term health. Participants can also join a sub-study to see how their genes affect their response to hydroxyurea. This is an observational study, not a test of new treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children's Hospital of Illinois at OSF-Saint Francis Medical Center
RECRUITINGPeoria, Illinois, 61637, United States
Contact Phone: •••-•••-••••
Contact
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Methodist Adult Comprehensive Sickle Cell Center
RECRUITINGMemphis, Tennessee, 38104, United States
Contact
Contact Phone: •••-•••-••••
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Novant Health Hemby Children's Hospital
RECRUITINGCharlotte, North Carolina, 28204, United States
Contact
Contact Phone: •••-•••-••••
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Our Lady of the Lake Regional Medical Center
COMPLETEDBaton Rouge, Louisiana, 70808, United States
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Regional One Health, Diggs-Kraus Sickle Cell Center
RECRUITINGMemphis, Tennessee, 38103, United States
Contact
Contact Phone: •••-•••-••••
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St. Jude Children's Research Hospital
RECRUITINGMemphis, Tennessee, 38105, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
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