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New scleroderma registry aims to unlock secrets of rare disease

NCT ID NCT01656447

First seen Jan 05, 2026 · Last updated May 22, 2026 · Updated 22 times

Summary

This study is creating a registry and repository for people with scleroderma, a rare autoimmune disease. Researchers will collect medical information and samples from 300 participants to better understand the disease's features, genetics, and biology. The goal is to lay the groundwork for future treatments, not to test a new therapy directly.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Hospital for Special Surgery

    RECRUITING

    New York, New York, 10021, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact

Conditions

Explore the condition pages connected to this study.