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New hope for kids with rare immune overreaction disease

NCT ID NCT04551131

First seen Nov 01, 2025 · Last updated Jun 18, 2026 · Updated 39 times

Summary

This study tests a treatment plan that adjusts medications based on how well a patient responds. It combines three drugs (ruxolitinib, dexamethasone, and etoposide) for children and young adults with a severe immune condition called HLH. The goal is to see if this approach is safe and effective for newly diagnosed patients or those whose disease has come back.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Children's Hospital of Orange County

    Orange, California, 92868, United States

  • Children's Hospital of Philadelphia

    Philadelphia, Pennsylvania, 19104, United States

  • Children's National Medical Center

    Washington D.C., District of Columbia, 20010, United States

  • Children's Wisconsin/Medical College of Wisconsin

    Milwaukee, Wisconsin, 53226, United States

  • Cohen Children's Medical Center

    New Hyde Park, New York, 11040, United States

  • Dana-Farber Cancer Institute

    Boston, Massachusetts, 02215, United States

  • John Hopkins University

    Baltimore, Maryland, 21287, United States

  • Levine Children's Hospital

    Charlotte, North Carolina, 28203, United States

  • Phoenix Children's Hospital

    Phoenix, Arizona, 85016, United States

  • St. Jude Children's Research Hospital

    Memphis, Tennessee, 38105, United States

  • Texas Children's Hospital

    Houston, Texas, 77030, United States

  • University of California San Francisco

    San Francisco, California, 94158, United States

  • University of Texas Southwestern Medical Center

    Dallas, Texas, 75235, United States

Conditions

The condition(s) this trial relates to.

hemophagocytic syndrome Lymphohistiocytosis, Hemophagocytic Recurrence

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.