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Simple blood draws from home may predict dementia years before symptoms

NCT ID NCT04516499

First seen Nov 01, 2025 · Last updated Jun 18, 2026 · Updated 38 times

Summary

This study looks at whether a protein called neurofilament light chain in the blood can help track brain changes in people who have a family history of frontotemporal dementia. About 342 participants will give blood samples every 3 months for 3 years, all from home. The goal is to understand how this protein changes over time, not to treat or cure the disease.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Columbia University

    New York, New York, 10032, United States

  • Johns Hopkins University School of Medicine

    Baltimore, Maryland, 21287, United States

  • Massachusetts General Hospital

    Charlestown, Massachusetts, 02129, United States

  • Mayo Clinic

    Rochester, Minnesota, 55905, United States

  • Mayo Clinic Florida

    Jacksonville, Florida, 32224, United States

  • University of California, San Francisco

    San Francisco, California, 94158, United States

  • University of Pennsylvania

    Philadelphia, Pennsylvania, 19104, United States

  • Washington University in St. Louis

    St Louis, Missouri, 63110, United States

Conditions

The condition(s) this trial relates to.

frontotemporal dementia frontotemporal dementia with motor neuron disease Frontotemporal Lobar Degeneration semantic dementia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.