Massive study aims to unlock secrets of inherited aortic disease

NCT ID NCT04005976

Recruiting now Knowledge-focused Sponsor: The University of Texas Health Science Center, Houston Source: ClinicalTrials.gov ↗

First seen Feb 02, 2026 · Last updated Apr 29, 2026 · Updated 10 times

Summary

This study is collecting health information from 5,000 people who have a genetic risk for aortic disease (aneurysm or dissection). The goal is to better understand how different gene changes affect the disease and find factors that influence outcomes. No new treatment is being tested; instead, researchers hope to improve future care by learning from participants' medical histories.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Baylor College of Medicine
RECRUITING

Houston, Texas, 77030, United States

Contact Email: •••••@•••••
Foothills Medical Centre / Alberta Health Services
RECRUITING

Calgary, Alberta, T2N 2T9, Canada

Contact Email: •••••@•••••
Ghent University Hospital (UZ Gent)
RECRUITING

Ghent, East Flanders, 9000, Belgium

Contact Email: •••••@•••••
Great Ormond Street Hospital
RECRUITING

London, England, WC1N 3JH, United Kingdom

Contact Email: •••••@•••••
HOAG memorial hospital presbyterian
RECRUITING

Newport Beach, California, 92663, United States

Contact Phone: •••-•••-••••

Contact Phone: •••-•••-••••
Hoag Memorial Hospital Presbyterian
RECRUITING

Newport Beach, California, 92663, United States

Contact Email: •••••@•••••
Hospital Universitari Vall d'Hebron
RECRUITING

Barcelona, Catalonia, 08035, Spain

Contact Email: •••••@•••••
Inova Health System
RECRUITING

Falls Church, Virginia, 22042, United States

Contact Email: •••••@•••••
Massachusetts General Hospital
RECRUITING

Boston, Massachusetts, 02114, United States

Contact Email: •••••@•••••
Oregon Health & Science University
RECRUITING

Portland, Oregon, 97239, United States

Contact Email: •••••@•••••
St. Francis Hospital (Catholic Health)
RECRUITING

Roslyn, New York, 11576, United States

Contact Email: •••••@•••••
Sutter Health
RECRUITING

Sacramento, California, 95816, United States

Contact Email: •••••@•••••
Texas Children's Hospital
RECRUITING

Houston, Texas, 77030, United States

Contact Email: •••••@•••••
The University of Texas Health Science Center at Houston
RECRUITING

Houston, Texas, 77030, United States

Contact Phone: •••-•••-••••
Toronto General Hospital (UHN)
RECRUITING

Toronto, Ontario, M5G 2C4, Canada

Contact Email: •••••@•••••
University of Kentucky
RECRUITING

Lexington, Kentucky, 40536, United States

Contact Email: •••••@•••••
University of Michigan
RECRUITING

Ann Arbor, Michigan, 48109, United States

Contact Email: •••••@•••••
University of Nebraska Medical Center
RECRUITING

Omaha, Nebraska, 68198, United States

Contact Email: •••••@•••••
University of Sydney
RECRUITING

Sydney, New South Wales, 2006, Australia

Contact Email: •••••@•••••
Washington University in St. Louis
RECRUITING

St Louis, Missouri, 63110, United States

Contact Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.

AORTIC ANEURYSM AORTIC ANEURYSM AORTIC DISEASES AORTIC DISSECTION