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Can we catch ALS before it starts? landmark study seeks answers

NCT ID NCT00317616

First seen Mar 30, 2026 · Last updated May 22, 2026 · Updated 5 times

Summary

This study follows healthy people who have a family history and genetic risk for ALS, but no symptoms yet. Researchers want to learn what early changes happen before ALS begins and what factors increase risk. Participants will travel to Miami for regular check-ups over several years. The goal is to better understand and eventually prevent this disease.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • University of Miami

    RECRUITING

    Miami, Florida, 33136, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.