Global PCD data pool aims to unlock secrets of rare lung disease
NCT ID NCT03517865
First seen Jan 04, 2026 · Last updated May 18, 2026 · Updated 14 times
Summary
This study gathers medical information from 3400 people with primary ciliary dyskinesia (PCD) around the world. Researchers will look at symptoms, lung function, growth, and test results to better understand how the disease progresses and how treatments affect patients. The goal is to learn more about this rare condition, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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University of Bern
Bern, 3012, Switzerland
Conditions
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