Can asking patients what they value improve dementia care? new study says maybe.
NCT ID NCT06001775
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tested a program called Patient Priorities Care in 178 people with dementia or mild cognitive impairment. Participants received a packet before their clinic visit and could talk with a trained facilitator about their personal healthcare goals. The study aimed to see if this approach is practical in real-world clinics and if it can be tracked using electronic health records.
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Study facts
What this study's own registry entry says, in plain language.
- Phase
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Not a phased trial
Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.
- Participants
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178 people
The number who actually took part.
- Started
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Aug 2023
- Finished
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Feb 2025
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
- Ages
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40 years and older
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: Patient Inclusion Criteria Patients must meet all of the following criteria to participate in this study: * 40 years or older * English-speaking at both Indiana sites or English and/or Spanish speaking at the University of Texas site * Receiving care with a participating physician * Has a scheduled outpatient care visit within 1-2 months (60 days) * Individual has a diagnosis of MCI or dementia Definition: To identify individuals with dementia and MCI, we will use two or more instances of use of an ICD-10 code for either diagnosis in the EHR within 24 months. Typically, we would include instances of these billing codes within a year of each other but, due to the COVID-19 pandemic, recognize that there may be less frequent clinical visits and less robust billing. Diagnostic codes include: • F01.50, F01.51, F02.80, F02.81, F03.90, G30.0, G30.1, G30.8, G30.9, G31.01, G31.09, G31.1, G31.2, F41.81, G31.84 and F03.91. Care Partner Inclusion Criteria Care partners must meet all of the following criteria to participate in the study: * 18 years or older * English-speaking at both Indiana sites or English and/or Spanish speaking at the University of Texas site A note about inclusion of care partners: Clinician determination of a patient's capacity to participate in a visit independently is part of a pragmatic approach. This means that clinic staff will determine when a care partner is needed. Generally, we act under the assumption that patients who require a care partner will have already included them in previous visits and/or provider communications (and we anticipate that this will be documented in the EHR), whereas patients who attend clinic visits independently and have no documentation indicating the involvement of a care partner in their medical decisions, or a need for one, will be determined to have the capacity to also participate in a PPC visit. Exclusion Criteria: Participants who meet any of the following criteria will be excluded from the study: * Is not community-dwelling- e.g. lives in a nursing home * Is enrolled in hospice * Individuals who decline to receive the PPC intervention (i.e. decline to have the PPC conversation) will be excluded from the study. * Note that declining to receive the PPC intervention will in no way impact the care that patients receive now or in the future.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Eskenazi Health
Indianapolis, Indiana, 46202, United States
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Indiana University Health Connected Care
Indianapolis, Indiana, 46219, United States
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University of Texas Health- Houston
Houston, Texas, 77030, United States
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