Study assesses palliative care for SMA type 1 babies
NCT ID NCT01862042
First seen Nov 01, 2025 · Last updated Apr 29, 2026 · Updated 22 times
Summary
This study looked at how well supportive and palliative care works for infants under 1 year old with spinal muscular atrophy type 1, a severe muscle-weakening disease. Researchers measured oxygen use and breathing support, and asked parents about their challenges and satisfaction. The goal was to improve comfort and quality of life for these babies.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Necker Hospital
Paris, 75015, France
Conditions
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