Study assesses palliative care for babies with rare muscle disease
NCT ID NCT01862042
First seen Nov 01, 2025 · Last updated Jun 10, 2026 · Updated 32 times
Summary
This study looked at how well supportive and palliative care works for infants under 1 year old with spinal muscular atrophy (SMA) type 1, a severe muscle-weakening disease. Researchers measured the use of oxygen therapy and breathing machines, and also interviewed parents about their challenges and satisfaction with care. The goal was to improve quality of life for these babies and their families.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Necker Hospital
Paris, 75015, France
Conditions
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